14-07-2005:
The Download section was updated with medical glossaries in English, Italian and Czech languages. The glossaries are provided as pdf files.
12-07-2005:
The Bulletins page was updated with issues number 5 and 6 in English, French; German, Italian, Czech and Swedish languages.
22-05-2005:
The Bulletins page was updated with issue number 4 in English,
Swedish
and Czech
languages.
PLEASE Note that any
Additional information for the Caserta
meeting can be obtained from the dedicated Caserta web-site
: www.gendeaf-congress2005.it
.
20-01-2005:
The final program of the Caserta GENDEAF meeting
is available here.
PLEASE Note that any
Additional information for the Caserta
meeting can be obtained from the dedicated Caserta web-site
: www.gendeaf-congress2005.it
.
04-10-2004:
The first announcements on the
final 2005 GENDEAF meeting are available
on-line. Future information can be also obtained
from www.gendeaf-congress2005.it
01-09-2004: The
Bulletins page has been updated with
the third issue in the
Swedish language.
02-08-2004: The
Bulletins page has been updated with
the first issue in the
Spanish language and the third issue of the
German
language.
23-06-2004: The
Bulletins page has been updated with
the second issue in the Swedish
language.
16-06-2004: The
Bulletins page has been updated with
the third issue in the French
language.
10-06-2004: The
Bulletins page has been updated with
the third issue in English
and Italian
languages.
10-06-2004: The Members
page has been enhanced with information regading the members
and their relationship to contractors.
26-04-2004:
The Psychosocial
page has been updated with the latest bibliography on the
Attitudes of Deaf people to Genetics and Genetic interventions.
Two formats are available : A small
format (characters of 10 pt) ; and a big
format (characters of 16 pt) .
20-04-2004: The
Psychosocial page has been updated with
the latest
list of Journals, books and theses containing information
on psychosocial effects of deafblindness
05-04-2004: The Bulletins page has been updated with the first and second issue issue in German language.
03-04-2004: The Bulletins page has been updated with the first and second issue issue in French language.
27-03-2004:We are posting
the latest information (personal communication to
Dr. Ceccarani) on the European campaign to have deafblindness
recognised as a "unique disability". This
campaign was launched at the meeting held at the European
Parliament on 6 January, 2004...
You can download the rest of the text in English or in Italian.
| 26-03-2004:Dear GENDEAF
Partners, We have just entered the last year of the
GENDEAF Thematic Network. In this frame, we are inviting you
and your collaborators to participate in the GENDEAF
Final Conference, to be held in Milano,
at Amplifon CRS, on April 23-24,
2004, in order to share the most updated results,
to discuss future perspectives and to define the strategies
for the final project period.
To see the whole invitation click here.
To download the program of the final invitation
click here.
|
28-01-2004: The Bulletins page has been updated with the first issue in Spanish language.
20-01-2004: The Bulletins page has been updated with the second issue in English and Italian Languages.
13-01-2004: Can
you help us?
As part of the GENDEAF programme we are interested in the effects that having a family history or genetic cause of hearing loss has had on you or other members of your family. The present literature in the field is very limited and we are keen to discover how people themselves think about this. In order to help us in our work we would like to hear from as many viewers of this website as possible. To see the rest of the questionnaire click here.
13-01-2004: As of today you can get access to the dedicates pages of the psychosocial group without the need of a special password
27-10-2003: The Bulletins page has been updated with the first issue in Swedish Language.
17-10-2003: The Bulletins page has been updated with the first issue in Czech Language.
09-10-2003: The
Information for non-members section
has been updated with a proposal (Dr. Guy Van Camp)
for a multi-center study. The study aims to refine and confirm
genotype-phenotype correlation, and to identify the associated
phenotype for most GJB2 mutations.
08-10-2003: The Bulletins page has been updated with the first issue in German and
French Language.
07-10-2003: The section dedicated to the Psychosocial group has been updated with the latest data file of books and theses.
01-10-2003: The Bulletins page has been updated with the second issue in Italian Language.
19-09-2003: The Bulletins page has been updated with the second issue in English Language.
27-08-2003: The section dedicated to the Psychosocial group has been updated with the latest data file of books and theses.
14-07-2003: The Bulletins section has been updated with the Swedish and Czech versions of bulletin 0.
10-07-2003: The Information for non-members section has been updated with a file from Dr. Guy Van Camp. The file explains how to describe the genetic and audiological data for families with nonsyndromic hereditary hearing impairment.
10-07-2003: The Information for non-members section has been updated with a report from group WP5.
10-03-2003: The Bulletins page has been updated with the first issue in Italian Language.
3-03-2003: A State-of-the-art Conference, has been announced. It will take place at the
CRS Amplifon location at
Via Ripamonti, 131, Milano, ITALY on
May 8-10 2003. For more information you can download a Word [170k] or an Acrobat (PDF) [17k] file.
10-02-2003: The section dedicated to the Psychosocial group has been updated with the latest data file of books and theses.
07-02-2003: The Bulletins page has been updated with the first issue in English Language.
27-01-2003:The 1st general GENDEAF meeting has been announced. The event will take place in - Milano Italy, from 8-11 May, 2003. More information will be posted in a few weeks.
21-09-2002:The links section has been updated with a link of the web site of the WP4 GENDEAF package
08-07-2002: The section with items to download has been updated with a contribution from CF-consulting srl, GENDEAF's administrator / negotiator with the EEC, regarding possible funding possibilities from the EEC, which might interest GENDEAF members.
14-03-2002: The section on the Links was updated with contents from the Hereditary Hearing Loss HomePage.
08-02-2002 Initial Meeting at Milano
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