Project co-ordinator:
Name: Mr. Giovanni Martino Rollier
Organisation: Amplifon S.p.A.
Postal address: via Ripamonti 133, 20141 Milano - Italy
Telephone: (39) 0257472373
Telefax: (39) 02.57409594
e-mail: rollier@amplifon.it
List of participants (ALPHABETICAL ORDER) :
Name: Prof. Serge Alziari
Organisation: University Blaise Pascal - Clermont 2, UMR CNRS 6547, Equipe Genome Mitochondrial
Postal address: 24, Avenue des Landais, 63177 Aubiere - France
Telephone: (33-4)73407424
Telefax: (33-4)73407042
e-mail: serge.alziari@univ-bpclermont.fr
Name: Dr. Karen Avraham
Organisation: Tel Aviv University, Department of Human Genetics and Molecular Medicine, Sackler School of Medicine
Postal address: Ramat Aviv, 69978 Tel Aviv (Israel)
Telephone: (972-3)640-7030
Telefax: (972-3)640-9900
e-mail: karena@post.tau.ac.il
Name: Prof. Elisa Calzolari
Organisation: Università di Ferrara, Istituto di Genetica Medica
Postal address: Corso Giovecca 203, 44100 Ferrara (Italy)
Telephone: (39)0532-291385
Telefax: (39)0532-291380
e-mail: cls@unife.it
Name: Dr. Guy van Camp, PhD
Organisation: Universiteit Antwerpen/Universitaire Instelling Antwerpen, Dept. of Medical Genetics
Postal address: Universiteitsplein 1, 2610 Antwerp, Belgium
Telephone: (32-3)8202585
Telefax: (32-3)8202566
e-mail: gvcamp@uia.ac.be
Name: Dr. Patrizia Ceccarani
Organisation: Lega del Filo D'Oro - ONLUS
Postal address: Via Montecerno, 1, 60027 Osimo (AN), Italy
Telephone: (39)07172451
Telefax: (39)071717102
e-mail: ceccarani.p@legadelfilodoro.it
Name: Prof. Giancarlo Cianfrone
Organisation: Associazione Italiana per la Ricerca sulla Sordità
Postal address: viale Cesare Pavese, 304, 00144 Roma
Telephone: (39)0644230133
Telefax: (39)0644240105
e-mail: airs@mclink.it
Name: Prof. Lionel Collet
Organisation: Centre National de la Recherche Scientifique, CNRS UMR 5020, Neurosciences et systèmes sensoriels
Postal address: Hospital Edouard Herriot Pavillon U, 3, place d'Arsonval, 69003 Lyon - France
Telephone: (33-472)110503
Telefax: (33-472)110504
e-mail: lionel.collet@chu-lyon.fr
Name: Prof. CWRJ Cremers
Organisation: University Hospital Nijmegen, ORL Dept.
Postal address: PO Box 9101, Philips van Laydenlaan 15, 6500 HB Nijimeng - the Netherlands
Telephone: (31-24)3614450
Telefax: (31-24)3540251
e-mail: d.helsper@kno.azn.nl
Name: Prof. Berth Danermark
Organisation: Oerebro University. The Swedish Institute for Disability Research
Postal address: S- 701 82 Oerebro, Sweden
Telephone: (46-19)303041
Telefax: (46-19)303601
e-mail: Berth.Danemark@ivo.oru.se
Name: Dr. Jose Antonio Enriquez
Organisation: University of Zaragoza - Dept. De Bioquimica y Biologia Molecular y Celular
Postal address: Miguel Servet, 177, 50013 Zaragoza - Spain
Telephone: (34-97)6761012
Telefax: (34-97)6761009
e-mail: enriquez@posta.unizar.es
Name: Dr. Xavier Estivill
Organisation: Fundació Privada Centre de Regulació Genòmica, Program of Genes and Diseases
Postal address: Dr. Aiguader 80, 08003 Barcelona, Spain
Telephone: (34 93) 542 2916
Telefax: (34 93) 542 28 02
e-mail: estivill@genet.sickkids.on.ca
Name: Dr. Christina Fasser
Organisation: Retina International, Section Europe
Postal address: Ausstellungsstrasse 36CH-8005 Zurich (Switzerland)
Telephone: (41-1)4441077
Telefax: (41-1)4441070
e-mail: cfasser@e-link.ch
Name: Prof. Paolo Gasparini
Organisation: Fondazione Telethon – Telethon Institute of Genetics and Medicine (TIGEM)
Postal address: via Pietro Castellino, 111 –80131 Napoli (Italy)
Telephone: (39) 081-6132227
Telefax: (39)0815609877
e-mail: gasparini@tigem.it
Name: Dr. Maria Bitner - Glindzicz
Organisation: University College of London, Institute of Child Health, Dept. of Clinical Molecular Genetics
Postal address: 30 Guilford St., London WC1N 1EH (United Kingdom)
Telephone: (44-207)9052287
Telefax: (44-207)4138141
e-mail: M.Bitner-Glindzicz@ich.ucl.ac.uk
Name: Dr. Ian Holt
Organisation: Medical Research Council, Dunn Human Nutrition Unit
Postal address: Wellcome Trust - MRC Building, Hills Road, CB22XY Cambridge - UK
Telephone: (44-1223)252840
Telefax: (44 –1223)252845
e-mail: ih@mrc-dunn.cam.ac.uk
Name: Prof. Howard T. Jacobs
Organisation: University of Tampere, Institute of Medical Technology
Postal address: Lenkkeilijaenkatu 6, FIN - 33520 Tampere - Finland
Telephone: (358–3)2157731
Telefax: (358–3)2157710
e-mail:
howard.t.jacobs@uta.fi
Name: Dr. George MC Janssen
Organisation: Leiden University Medical Centre, Department of Molecular Cell Biology
Postal address: Wassenaarseweg 72, 2333 AL Leiden, The Netherlands
Telephone: (31 –71)5276296
Telefax: (31-71)5276125
e-mail: G.M.C.Janssen@lumc.NL
Name: Dr. Leslie Jones
Organisation: University of Leeds - Centre for Research in Primary - Care Research School of Medicine
Postal address: 71-75 Claredon Road, L52 9 PL Leeds - UK
Telephone: (44-113)2334186
Telefax: (44-113)2334836
e-mail: l.g.jones@leeds.ac.uk
Name: Dr. Patricia Kerr
Organisation: Queen Margaret University College, Dept. of Management and Social Sciences
Postal address: Clerwood Terrace - EH12 8TS Edinburgh Scotland
Telephone: (44-131)3173603
Telefax: (44-131)3173605
e-mail: pkerr@qmuc.ac.uk
Name: Mrs. Anny Koppen
Organisation: Nordic Staff Training Centre for Deafblind Services
Postal address: Slotsgrade 8, DK - 9330 Dronninglud - Danmark
Telephone: (45-96)471602
Telefax: (45-96)471616
e-mail: nud@nud.dk
Name: Dr. Sophia Kramer
Organisation: VU, Free University of Amsterdam, Faculty of Medicine, Dept. of ENT
Postal address: PO Box 7057; De Boelelaan 1117, 1007 MB Amsterdam - the Netherlands
Telephone: (31-20)4440969
Telefax: (31-20)444368
e-mail: SE.Kramer@vumc.nl
Name: Dr. Vibeke Leth
Organisation: Danish Association for Cochlear Implanted Children
Postal address: Po Box: 14, Dyrelunden 1, DK 3320 Skaevinge DK
Telephone: (45-35)283727
Telefax: (45-35)283701
e-mail: vl-nhs@post9.tele.dk
Name: Prof. Alessandro Martini
Organisation: Department of Audiology – ENT Clinic, Università degli Studi di Ferrara
Postal address: corso Giovecca 203 , 44100 Ferrara, Italy
Telephone: (39)0532236429
Telefax: (39)0532236887
e-mail: mma@dns.unife.it
Name: Dr. Manuela Mazzoli
Organisation: Azienda Ospedaliera di Padova, Unità Operativa Autonoma di Otochirurgia
Postal address: Via Giustiniani, 2, 35128 Padova
Telephone: (39)0498212033
Telefax: (39)0498211994
e-mail:
manuela.mazzoli@sanita.padova.it
Name: Dr. Vanessa Migliosi
Organisation: International Federation of Hard of Hearing Young People
Postal address: Via Oriola 12, 38100 Trento
Telephone: (39)0461236966
Telefax: (39-0461)236966
e-mail: mivane@tin.it
Name: Prof. Claes Moeller
Organisation: The Sahlgrenska Academy, Göteborg University, Dept. of Audiology
Postal address: Groena straaket 11, SE - 413 45 Gothenburg, Sweden
Telephone: (46-31)3421605
Telefax: (46-31)829811
e-mail: claes.moller@audiology.gu.se
Name: Dr. Felipe Moreno
Organisation: Hospital Ramon y Cayal, Insalud, Unitad de Genetica Molecular
Postal address: Crta. De Colmenar, Km. 9100, 28038 Madrid - Spain
Telephone: (34-91)3368541
Telefax: 34-91-3369016
e-mail: fmoreno.hrc@salud.madrid.org,
idelcastillo.hrc@salud.madrid.org
Name: Dr. Alessandra Murgia
Organisation: University of Padua, Department of Pediatrics, Laboratory of Molecular Genetics
Postal address: via Giustiniani, 3 - 35128 Padova (Italy)
Telephone: (39)0498211430
Telefax: +39 - 0498213502
e-mail: alessm@child.pedi.unipd.it
Name: Dr. Valery Newton, Prof. Andrew Read
Organisation: Victoria University of Manchester, Dept.of Education Studies – Centre for Human Communication and Deafness
Postal address: Oxford Road, Manchester M13 9PL (UK)
Telephone: (44-161)2753363
Telefax: (44-161)2753795
e-mail: valerie.newton@man.ac.uk
Name: Dr. Kevin O'Dell
Organisation: University of Glasgow, IBLS Division of Molecular Genetics
Postal address: Anderson College Complex, 54 Dumbarton Road, Glasgow, G11 6NU, United Kingdom
Telephone: (44-141)3306218
Telefax: (44-141)3305994
e-mail: K.Odell@bio.gla.ac.uk
Name: Ms. Berit Oeie
Organisation: Deafblindness Center of Northern Norway
Postal address: PO Box 3323, Gimleveiene 64-68, 9275 Tromsoe - Norway
Telephone: (47-777)53110
Telefax: (47-777)53111
e-mail: b-r-oie@frisurf.no ; berit.r.oie@komsa.no
Name: Prof. Agnete Parving
Organisation: Copenhagen Hospital Corporation, Audiological Dept., H:S. Bispebjerg Hospital
Postal address: Bispebjerg Bakke 23, 2400 CPH. NV., Denmark
Telephone: (45-35)312717
Telefax: (45-35)313951
e-mail: ap03@bbh.hosp.dk
Name: Prof. Christine Petit
Organisation: Institut Pasteur, Unité de Génétique des Déficits Sensoriel
Postal address: 25, Rue du Docteur Roux, 75725 Paris - France
Telephone: (33-1) 45688850
Telefax: (33-1)45676978
e-mail: cpetit@pasteur.fr
Name: Prof. Dafydd Stephens
Organisation: University of Wales, College of Medicine, Welsh Hearing Institute
Postal address: Cardiff CF14 4XW, United Kingdom
Telephone: (44-2920)743474
Telefax: (44-2920)744563
e-mail: stephensd@cardiff.ac.uk
Name: Prof. Lisbeth Tranebjaerg
Organisation: University of Copenhagen, The Panum Institute, Dept.of Medical Genetics, IMBG
Postal address: Blegdamsvej, 3, Copenhagen, Denmark
Telephone: (45-3531)6341
Telefax: (45 3531)3951
e-mail: lisbetht@fagmed.uit.no; lt05@bbh.hosp.dk
Name: Massimo Zeviani, MD, PhD
Organisation: Istituto Nazionale Neurologico "Carlo Besta", Division of Biochemistry and Genetics
Postal address: via Celoria 11, Milano 20133 (Italy)
Telephone: (39)022394388
Telefax: (39)022664236
e-mail: zeviani@tin.it
Additional Collaborators
Institute of Child Health, Department of Genetics,"Aghia Sophia" Children's Hospital,GR-11527 Athens Greece
Director: Michael B. Petersen, MD, PhD, DMSc
Phone : +30 210 74677890 Fax : +30 210 7700111
E-mail: inchildh@otenet.gr
web-address: http://www.ich.gr
The Palacky University, Pedagogical Faculty, Department of
Special Education
Name: Milon Potmesil, PhDr., PaedDr., PhD (partner NAS)
Postal address: Zizkovo namesti 5, 77740 Olomouc, Czech Republic
Phone: (42) 0585635323
Telefax: (42) 0585231400
E-mail: mpotmesil@atlas.cz
